Evaluation of atopy schools for parents
Main Article Content
Keywords
atopic dermatitis, Atopy School therapeutic education
Abstract
Introduction: Atopic dermatitis is a highly prevalent chronic disorder. Therapeutic education in diseases of this kind is essential in order to improve patient management and prognosis. A study was conducted regarding parent satisfaction following educational sessions in an Atopy School organized by a multidisciplinary team.
Material and methods: E-mail surveys with variables scored by means of a Likert scale were administered among the parents participating in the workshops organized by the Atopy School. The educational program comprised four sessions with a duration of 4 hours.
Results: Ninety-five percent of the parents were satisfied after participating in the workshops, and were of the opinion that the therapeutic education received was useful for improving control of the illness of their children. Likewise, 85% were satisfied or very satisfied with the help received in the sessions for control of the disease during flare-ups, and 90% considered the data and advice received in the sessions to be of use in improving quality of life of both the children and the family as a whole.
Conclusions: The Atopy School afforded caregiver empowerment, and the parents were satisfied and felt more secure in dealing with the disease of their children—thereby improving the prognosis and quality of life.
References
2. Fishbein AB, Silverberg JI, Wilson EJ, Ong PY. Update on atopic dermatitis: diagnosis, severity assessment, and treatment selection. J Allergy Clin Immunol Pract. 2020;8:91–101. 10.1016/j.jaip.2019.06.044
3. World Heatlh Organization. Regional Office for Europe. (1998). Therapeutic patient education: continuing education programmes for healthcare providers in the field of prevention of chronic diseases: report of a WHO Working Group. Copenhagen: WHO Regional Office for Europe.
4. Weingarten SR, Henning JM, Badamgarav E, et al. Interventions used in disease management programmes for patients with chronic illness–Which ones work? Metaanalysis of published reports. BMJ. 2002;325:925. 10.1136/bmj.325.7370.925
5. Osterberg L, Blaschke T. Adherence to medication. N Engl J Med. 2005;353:487–497. 10.1056/NEJMra050100
6. Krejci-Manwaring J, Tusa MG, Carroll C, et al. Stealth monitoring of adherence to topical medication: adherence is very poor in children with atopic dermatitis. J Am Acad Dermatol. 2007;56:211–216. 10.1016/j.jaad.2006.05.073
7. Li Y, Han T, Li W, Li Y, Guo X, Zheng L. Awareness of and phobias about topical corticosteroids in parents of infants with eczema in Hangzhou, China. Pediatr Dermatol. 2018;35:463–467. 10.1111/pde.13527
8. European Task Force on Atopic Dermatitis. Severity scoring of atopic dermatitis: the SCORAD index. Consensus report of the European Task Force on Atopic Dermatitis. Dermatology. 1993;186:23–31. 10.1159/000247298
9. Chinn DJ, Poyner T, Sibley G. Randomized controlled trial of a single dermatology nurse consultation in primary care on the quality of life of children with atopic eczema. Br J Dermatol. 2002;146:432–439. 10.1046/j.1365-2133.2002.04603.x
10. Gradwell C, Thomas KS, English JS, et al. A randomized controlled trial of nurse follow-up clinics: do they help patients and do they free up consultants’ time? Br J Dermatol. 2002;147:513–517. 10.1046/j.1365-2133.2002.04901.x
11. Shaw M, Morrell DS, Goldsmith LA. A study of targeted enhanced patient care for pediatric atopic dermatitis (STEP PAD). Pediatr Dermatol. 2008;25:19–24. 10.1111/j.1525-1470.2007.00575.x
12. Staab D, Diepgen TL, Fartasch M, et al. Age related, structured educational programmes for the management of atopic dermatitis in children and adolescents: multicentre, randomised controlled trial. BMJ. 2006;332:933–938. 10.1136/bmj.332.7547.933
13. Grillo M, Gassner L, Marshman G, et al. Pediatric atopic eczema: the impact of an educational intervention. Pediatr Dermatol. 2006;23:428–436. 10.1111/j.1525-1470.2006.00277.x
14. Stalder JF, Bernier C, Ball A, de Raeve L, Gieler U, Deleuran M, et al. Therapeutic patient education in atopic dermatitis: Worldwide experiences. Pediatr Dermatol. 2013;30:329–333. 10.1111/pde.12024
15. Barbarot S, Bernier C, Deleuran M, De Raeve L, Eichenfield L, El Hachem M, et al. Therapeutic patient education in children with atopic dermatitis: position paper on objetives and recommendations. Pediatr Dermatol. 2013;30:199–206. 10.1111/pde.12045
16. Domínguez-Cruz JJ, Pereyra-Rodríguez JJ, Ruíz Villaverde R. Empoderamiento y dermatología. Actas Dermosifliogr. 2018; 109:133–9. 10.1016/j.ad.2017.09.008
Article Sidebar
Article Details
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.